Lost in Translation

Sometimes there is more than just the Pacific Ocean between us and our boy. 

For example, our son's diagnosis on his referral isn't even a medical term in the United States.  We think we might know what they are attempting to say, but even that is cryptic because his actual medical information doesn't even match up with that.  For example, let's say your child was diagnosed with asthma.  You would expect to see things like "wheezing, shortness of breath, and crackling lungs" on her chart.  But what if your daughter's dx was clearly stated as asthma but the file read "breathing normal, no signs of wheezing, oxygen levels normal"? 

What we do know is that he is delayed in his motor development and possibly speech.  Profoundly by Chinese standards.  Within norms by US standards.  And considering that he has been institutionalized his entire life, we are not surprised.

But also there are just some things that us Americans say and value that are a far cry from the way it is done in China.  I think sometimes I forget my son is in a Communist country.  For example, on his referral there is a section that tells us he can pick up a pill with his fingers.  I understand this is a measure of his dexterity, but can you not have my son playing with pills? 

We had the opportunity to recently ask questions of his caregivers.  I asked if he was able to play peek a boo or does he look for things hidden by his caregivers.  Basically, I was wondering if he had learn object permanence, a typical question at a 12 month check up.  They responded that their caregivers do not hide things from their children.

 I did ask what his favorite foods were.  Apparently he and Gracie are kindred spirits already as his favorite foods are bread and cookies.   (Note to self:  find out if the sell Oreos and graham crackers in China.) 

I also asked what his favorite toys or books were.  They responded as they were unsure as he has not been exposed to these things. 

Y'all, we gotta get my boy home.  Forget about praying for funds, let's pray for his paperwork to move along swiftly.  We've got to get a Thomas book in our boy's hands STAT.